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DAMAGED PATIENTS DENIED CARE Return to Our Comments

THIS HAS, WE BELIEVE,  BEEN ACKNOWLEDGED PUBLICLY THREE TIMES
 

1. SIN was the first group courageous enough to make public the unthinkable truth that doctors are capable of  deliberately and systematically denying damaged patients, who are seriously ill, the medical care to which they are entitled by law. In SIN's Manifesto, first made public in Nov. 1998 SIN said:

"....there is evidence that doctors subsequently deny patients appropriate treatment to cover-up their colleagues' incompetence and or/ negligent mistakes. One theory is that appropriate treatment to remedy iatrogenic damage could lead to a successful complaint and/or disciplinary action and/or in extreme cases, [successful] medical negligence litigation". 

2. In June 1999 the Health Select Committee held an Inquiry into "Adverse Medical Incidents and their Outcomes". There were almost 300 submissions to the Committee and SIN was pleased that it was able to inform quite a few iatrogenic patients about this Inquiry and so gave them an opportunity to be involved. 

On October 24th 1999 there was an article in The Observer which promoted SIN and also contained quotes from the Health Select Committee following the above Inquiry. The heading of the article was " Doctors 'blacklist' dissatisfied patients: NHS close
 

s ranks against sick who dare to complain about treatment"  A quote from the Health Select Committee following on from their findings said:

"It is certainly true that patients are blacklisted by consultants and GPs"
To be blacklisted by consultants means that a sick patient is  effectively denied  specialist care.
NOT ONLY IS THIS DISGRACEFUL, BUT IT IS ALSO UNLAWFUL
"If you cannot trust your doctor, who then can you trust?"
In the article SIN was  described as  : "...a group of patients have formed a campaign to fight back........there is a 'not in my backyard syndrome' because doctors are frightened of being brought into a case that often involves very senior members of their specialist discipline...."

3. The most recent public acknowledgement of this unpalatable truth was in Lord Woolf's Lecture  on 17th January, 2001 when he conceded :"...where, if a patient unfortunately had an unsatisfactory outcome, the medical carers ........needed to recognise that because patients felt that they had been a victim of medical malpractice,  this did not justify withdrawing treatment. [rather] It meant that those who had a responsibility for treating the patient were under a particular duty to achieve the best result possible for the patient".
We sincerely  hope the Medical Profession will take heed of Lord Woolf's wise words.
 

PRESS  NOTICE: HEALTH SELECT COMMITTEE:    Return to Our Comments
The Health Select Committee regularly investigates and takes evidence from the public on a range of health issues. SIN will endeavour to draw attention to  any Press Notice received in order to keep the public informed and to give interested parties an opportunity to participate in any forthcoming debate by submitting written evidence and thereby  exerting  democratic  pressure to improve standards in the NHS
     
    GUIDE TO SUBMITTING WRITTEN EVIDENCE
  • It is open to any organisation  or individual to submit evidence to the Committee
  • Written evidence should contain, if appropriate, a brief introduction to the persons or organisations submitting it [perhaps stating their area of expertise, etc.], and any factual information they have to offer from which the Committee might be able to draw conclusions [ or which could be put  to witnesses fro their reactions]. It is also helpful to include any recommendations  for action by the government or others which the witnesses would like the Committee to consider for inclusion in its Report.
  • Written evidence should be as concise as possible and in the form of a self-contained memorandum. Unless memoranda are extremely short, they should be prefaced by an executive summary.
  • Memoranda should have numbered paragraphs and pages. If possible, colour printing should be avoided. 
  • Memoranda and other communications should be addressed to the The Clerk of the Health Committee, House of Commons, 7 Millbank , London, SW1P  3JA
  • Unless indicated otherwise, it will be assumed that those submitting written evidence have no objections to it being made public by the Committee. If witnesses give oral evidence, copies of their written evidence will usually be made available to the press and public at the hearing and treated as being in the public domain their after. Written submitted by those not giving oral evidence will usually be made public by the Committee at the end of the Inquiry,by publication or other means.
  • The text of the Committee Reports, minutes of evidence and Press Notices can be accessed through the Internet at Parliament's website:
        www.parliament.uk/commons/hsecom.htm


           FOR INQUIRIES TELEPHONE FRANK McSHANE ON 02072195466

    1.   INQUIRY INTO THE SAFETY  OF BREAST IMPLANTS, Thursday March 22nd :  oral evidence to be taken.
    TERMS of REFERENCE:

    • The role of the Medical Devices Agency
    • The process whereby information relating to risks is disseminated
    • The information provided by the Department of Health directly to the public and action taken in response to concerns raised.
    • Guidance to health care professionals.
  • 2.   NEW INQUIRY : NATIONAL INSTITUTE OF CLINICAL EXCELLENCE (NICE)
    • Organisations or individuals wishing to submit written evidence to do so no later than Friday 4th January, 2002
    • TERMS OF REFERENCE
    • The Committee will consider the progress NICE has made in achieving the key goals envisaged in A First Class  Service and as such:
    • is providing clear and credible guidance
    • has ended confusion by providing a single national focus
    • is providing guidance that is locally owned and acted on in the right way
    • is actively promoting intervention with good evidence of clinical and cost-effectiveness so that patients have faster access to treatments known to work
    • The Committee will also specifically examine the independence of NICE
  • 3.   NEW INQUIRY: INTO THE ROLE OF THE PRIVATE SECTOR IN THE NHS
  • The Committee has arranged the following meetings  to be held in public during November and December:
  • Thursday 29th Nov. 10.30am: Oral evidence from NHS Alliance, BMA and partnerships UK
  • Thursday 6th. Dec. 10.30am: Oral evidence from: Medway Maritime NHS Trust; Channel Primary Care Group ( East Kent Health Authority); Federation of Independent Practitioners;, General Healthcare Groups; IndependenH health Care Assoc. ; Assoc. Community Health Councils; Royal College of Nursing; & NHS Confederation.
  • Wednesday 12th. Dec. 4.00pm: Rt. Hon. Alan Milburn MP, Secretary of State for Health(NB. THIS MEETING POSTPONED UNTIL NEW YEAR)
  • 4.. NEW INQUIRY: SEXUAL HEALTH
  • The health Committee will undertake an inquiry into the above subject.
    • The Committee will examine the effectiveness of the Government's strategy for sexual health in the context of the consultation document 'Better Prevention, Better Services, Better Sexual Health: The National Strategy for Sexual Health and HIV' 
    • Organisations and individuals wishing to submit written evidence are invited to do so no later than Wednesday 5 June 2002. Evidence sessions are likely to commence in June and a later press notice will give details of these.
    • For Inquiries about the work of the Health Committee telephone Frank McShane on 0207 195 466

     
     
    SECOND  OPINIONS!.......
    WHAT SECOND OPINIONS?
    Return to Our Comments

    SIN is very concerned about the experiences of patients  who are victims of a medical error  (iatrogenic patients) and their difficulties in obtaining genuine second opinions.

    We have received a very critical report of one member's attempt to obtain a second opinion at Guy's & St. Thomas' Trust, London. We, therefore, thought it necessary to establish the procedures/protocols already in place at this Trust to ensure that patients receive a good standard of medical care, and have written today , 19th February, 2001 a letter to the Chief Executive:

    Re: Clinical Governance:Second Opinions
    "We are writing to request the documented procedures/protocols which Guy's & St. Thomas' Trust has in operation which will govern the standards which an individual patient can expect to receive after being referred to a Consultant Physician at your Trust by the patient's GP for a full reappraisal of their medical condition with a fresh comprehensive range of tests.
    We look forward to a rapid response to this request, and should be most grateful if your reply is faxed through .........
    This letter will be posted on the WWW, and your reply will be of great interest to patients in general and to iatrogenic patients in particular.
    Yours sincerely,  "
    [As soon as we receive the reply we shall post it on the web]
    We received  prompt reply from the Chief Executive, dated 21st. February, in which he wrote:
    "In common with other parts of the NHS Guy's & St. Thomas' respects the rights of individual patients to a seek second opinion.

    "Where one of the consultants of this trust is asked by a general practitioner for a second opinion then that consultant will make their own clinical judgement as to the extent of the re-assessment particularly with regarded to the repeating of the investigations previously performed elsewhere. Unnecessarily repeating tests that have been satisfactorily performed elsewhere and that have produced a clear result may not be in the patient's best interest. That is however a matter of individual clinical judegement.

    "The Trust does not have specific documented protocols covering the provision of second opinions at the request of general practitioners.All clinical care within this Trust is covered by a code of conduct to which all members of the Trust particularly those with direct involvement in clinical care, are expected to abide."

    SIN replied to this letter dated 22nd February :

    " We should be most grateful if you would furnish SIN with details of this code of conduct"

    We have not yet received a reply!
    Last updated 17th March, 2001 Last updated 25th April,2001

     
    SIN'S COMMENTS ON THE INQUIRIES REPORT AND THOSE ISSUES RAISED WHICH ARE OF  PARAMOUNT IMPORTANCE TO PATIENTS IN GENERAL Return to Our Comments
    Updated & completed 4th July, 2001

    1. How Independent is an "Independent " Inquiry such as this?

    Can the following be seen as a conflict of interests?:

  • Dr. Stewart Hunter was asked to verify statistics at both hospitals following the concerns voiced by an anonymous whistle blower at the higher than average death rates at the Royal Brompton and later  to verify the statistics  from the BRI Inquiry  which pointed to Harefield having a  paediatric surgical death rate only higher than the BRI. Was Dr. Hunter an appropriate person to verify the statistics considering that he had acted as an expert witness in a recent  court case ,two years previously, defending a legal action against clinicians at the Trust?
  • Mrs.Ruth Evans, Chair of the Inquiries is at present a Lay member of the GMC. Surely,  all such  Independent Inquiries should be independent from any of the Statutory Bodies established to regulate and discipline members of the medical profession.   The presence of  any member of the GMC must surely be prejudicial to any family who may have  wished to have their case heard by the GMC at any future date and would have pre-empted any such action.  Unbeknown to parents who were participating in this Inquiry, expert evidence was solicited from two further members of the GMC, namely: Ms.  Isabel Nisbet, Director of Fitness to Practice, GMC ( former Deputy Ombudsman), and Mr Anthony Townsend, Director of Standards of Education .  Could  this strong presence of the GMC at this Independent Inquiry , be construed by the parents as a an iniquitous conflict of interest?
  • Dr. Barry Keeton was the cardiologist used by the panel  to advise the Brompton families.  He is presently a Consultant in Paediatric Cardiology at Southampton General Hospital, but was, however, formerly  employed at the Royal Brompton as a Paediatric Cardiologist. Can this be seen as a conflict of interest to the families concerned,  would it not  have been wiser to have called in someone who was not a former employee of the Trust?
  • The location of this "Independent"  Inquiry was: 40, Eastbourne Terrace, Paddington London, which happens to be the Regional  Offices of the North Thames NHS Executive.This venue  hardly suggests  independence  from the NHS, of which the Trust is an integral part.
  • The Chief Executive of the Trust was allowed an advanced copy of the Report one week before the Press Conference and was able to prepare a written response. However, Josephine Ocloo, Chair of BHHCAG, only received her copy 36 hours before, although she had signed a confidentiality agreement.  One family reported that a copy of the Report had been dumped on the front doorstep and was discovered there on Sunday morning, 24hrs. before the Press Conference. Since this Report was supposed to be  "independent" from the Trust should nor both participants: the families and the Trust, have received  the Report at the same time? To have  allowed the Trust prior disclosure is surely a conflict of interests, since the families were not allowed an equal amount of time to put together their considered responses?
  • Medical Records
  • 2. Medical Records: The keeping of  good medical records is essential for accurate diagnosis and medical care. The Royal Brompton & Harefield are two of our top hospitals, yet there was severe criticism at the standard of the medical record keeping at these hospitals. (Section 24 "medical records" p253 - 264)
  •  

    GMC GOOD PRACTICE GUIDE: Duties & Responsibilities of Doctors:
    Good Clinical Care  : In providing good  care you must :
    3 (d) Keep clear, accurate, and contemporaneous patient records which report the relevant clinical findings, the decisions made, the information given to patients and any drugs or other treatment prescribed.

    Families and the Panel  had great problems when trying to access medical records and a significant number of families  found that crucial documents were missing (para 24.10 p. 255/6) and "rarely was there any record of what was said to parents,  what concerns they expressed and what were the views of the clinicians concerned" (para 24.24 p.260)
    Quotes of families: "If we dealt like that we would be sacked immediately in our job.....but these guys, who are looking after peoples lives are allowed to bin it.."  (para. 24.10 p. 255)   The parents of a child who had died confirmed that her records were missing "literally one month after she died..."  (para. 24.11p256) ...Four cases experienced unacceptable delays with parents of one child experiencing a delay of three years : "I had been asking for those  (notes) since a month after she died ( 3 years ago).  (para.24.17 p258). " It has been dreadful. It has taken 5 people in my family to try and sort these notes out, trying to put them where they are supposed to go" ( 24.28 p259)
    SIN endorses the Brompton  &  Harefield Heart Children's Action Group's that "failure to keep proper medical records be made a criminal offence". 
    It is clear that SIN's proposal to put medical records under the control of the patient i.e. for a copy set to be held by the patient or parents  in the case of a child; and that summaries of consultations to be  signed and checked for accuracy by the patient,   is  essential for patient safety.
    It should be compulsory that a patient's medical records be kept at the bedside  in all hospital wards.

    Stenographer: the best way of recording interview transcripts?

    3. Stenographer: She was there to provide a verbatim transcript of the hearing. Parents who received copies of these "verbatim " transcripts found that these contained numerous and very serious errors. For example statements made in the negative were transcribed as in the affirmative,  which would have totally misled any reader of the transcript e.g...........
    (a) One family discovered that several crucial clinical statements made by the Panel's cardiologist had been wrongly transcribed  and were attributed to the parent, thereby negating the significance of these critical medical opinions.
    (b) In one transcript, the statement of the Panel's cardiologist , when he clearly stated that he would not have continued with the surgery because....., was wrongly transcribed  without the negative, thereby giving the reader the totally wrong impression that he would have gone ahead with surgery. 
    Surely the time has come in  the 21st. Century that full use is made of modern technology. SIN suggests that all such inquiries are tape recorded /videod in future , all primary participants getting copies.  [This should surely apply  to court hearings too?] 

    All Access to Natural Justice Thwarted

    4.   (a) Legal Route
    To quote from Report: " Early on in our Inquiry, a request for legal representation at hearings was raised with us by the BHHCAG  ( Parents' Action Group), and by some clinicians. The Panel concluded that none of the parties, including the Panel itself should be represented by lawyers as this would have made our proceedings disproportionately adversarial , time consuming and costly." [p13]

    This statement is confusing for those who participated in the Inquiry and  misleading to the reader, for a top medical litigation lawyer, MS Sarah Leigh, was available to the panel throughout the course of the Inquiry and, indeed, was present at many of the  parents' Panel hearings.  If she were not providing legal advice  to the panel,  then  what was her role in this Inquiry?  MS Leigh is a senior medical litigation lawyer at Leigh Day & Co., and is also secretary of the NHS Clinical Disputes Forum. 

    SIN can find no mention in the Report of  any reference to the Panel clearing the cases heard of clinical negligence, and indeed the Report states: " A few wanted us to attribute blame to particular individual for what happened to their child. That was not within our remit, not least because we did not have the legal powers to act in that way." [p395]

    Astonishingly, at the Press Conference Mrs Evans claimed that the Inquiry could find no evidence of clinical negligence. This clearly contradicted her comments in the Chairman's Forward when she claimed that the Inquiry she chaired was not:"....a substitute for the courts. We directed parents towards these avenues where appropriate." The ensuing media coverage from the Press Conference, not suprisingly, quoted her as stating that no clinical  negligence had been exposed, as though it had been  recorded as an official finding  in the Report . Should she not be obliged to publicly retract this grossly misleading statement?

    Following the Press Conference Gillian challenged MS Caroline Langridge, Secretary to the Inquiry, and asked her, since Mrs Evans had  claimed publicly that no medical negligence had been found, did this mean that Ms Sarah Leigh, the medical litigation lawyer, sitting on the panel, had cleared all the cases of clinical negligence? Ms Langridge replied that that was not the case because the Panel were not looking for clinical negligence. IN THAT CASE, GILLIAN POINTED OUT, IF THE PANEL WERE NOT LOOKING FOR CLINICAL NEGLIGENCE, HOW COULD  MRS EVANS STATE THAT NONE HAD BEEN FOUND?

    (b) The GMC Route
    The Report claims that Panel members did: "....not encounter actions or issues at the RBH  or Harefield Hospital which, on the basis of our inquiries and the information which we have obtained, should in our views have been reported to the GMC or the UKCC [p20] [What about the poor medical record keeping? see Section 2 above]

    Only after the publication of this Report were the parents made aware that there were 22 "expert witnesses"  involved behind the scenes with this Inquiry. These included two experts from the GMC namely: Ms Isabel Nisbet, Director of Fitness to practice & Mr Anthony Townsend, Director of Standards and Education.  The inference can be drawn that these individuals, drafted in from the GMC, proffered their advice to the panel. To all intent and purposes this was surely a "quasi investigation " of the GMC under the guise of the "independent inquiry" which effectively precludes any family from taking their case to the GMC.  It was an affront to the families that this quasi investigation took place without their knowledge and consent and they were unable to make personal representation to these members of the GMC.  So much for informed consent which was promoted as one of the recommendations of the Report. [ Recommendations, main Report p.71 & 72,  in addtion to these, see also p169 which are the recommendations re: consent for Harefield].

     Apparently, the Panel members : " interviewed or received written submissions from" these expert witnesses. [Chair's Forward].  Should not the  ensuing documentation voicing the opinions of these experts  have been included  with the  final Report?

    (c) CHI  Commission For Health Improvements

    CHI is a relatively new Agency set up to improve standards in the NHS and the Chief Executive, Dr Peter Homa, was another expert witness called in to give advice behind the scenes. Again precluding the BHHCAG from using this organisation  to look collectively at their cases.

    (d) NHS Complaints Procedure
    Mrs Evans had no hesitation in recommending the NHS Complaints procedure as a means of redress, even though the Panel members had obtained copies of SIN's critique of the NHS Complaints Procedure, which clearly shows that '...the NHS Complaints System is a confidence trick played on the trusting patient at the tax-payer's expense.' [ Click here to read "The Emperor Has No Clothes"] The paper proves that the NHS Complaints Procedure does not:

    • apportion blame
    •  consider clinical negligence
    •  consider disciplinary matters
    • allow the Ombudsman's Office  to investigate any complaint which could have a legal remedy
    • allow patients an impartial hearing, which is a denial of our human rights and, as of October 2000, following the introduction of the Human Rights Act, it is now officially unlawful  [see Conclusion para.11.2 in SIN's Paper click here to read" The Patient's Voice For Equity]
      Whistle Blowers
    5.  As a result of Private Eye being contacted by an annonymous whistle blower, a three day review of paediatric cardiac surgery was carried out at the Royal Brompton Hospital in August 1999. This Review looked into the allegations of poor outcomes in paediatric cardiac surgery with particular reference to Downs Syndrome children. The Review makes reference to the whistle blower's allegations being 'unfounded and malicious'.  This review did not allay  parents' fears, and several other families brought their concerns  to the attention of the media, following its publication. In view of the parents' misgivings, an Independent Inquiry was recommended by the ReviewTeam - although the Review records that the motives and allegations of the whistle blower had been denigrated.

    This Review congratulated the Trust on their structures set up since 1998 to allow whistle blowers to raise their concerns internally. However, the Evans' Report was more critical and identified a number of weaknesses in the Trust's speaking up policy. (page 285, para.26.15)

    Statistics

    6.  The Report fails to mention that the Harefield Hospital was included in the Inquiry because  statistics obtained via the BRI Inquiry showed that Harefield had the second highest paediatric surgical death rate for children over one year, after the Bristol Royal Infirmary itself. Dr. Stewart Hunter & associates were asked to validate the Harefield Hospital data. Although their  findings  were published on  8th. March 2001, the analysis of this data was not included even as an appendix,  in the Evans' Report. A decision was made to merge the findings of  these two separate inquiries into one Report: "The Report of the Independent  Inquiries into Paediatric Cardiac Services at the Royal Brompton Hospital and Harefield Hospital April 2001"

    Down Syndrome Discrimination?

  • 7.  None of the 7 families involved in the Harefield Inquiry had a Down Syndrome child. Of the 42 Brompton families, only 14 cases involved a Down Syndrome Child. Although fewer than a third of the cases reviewed affected families alleging discrimination on the grounds of Down Syndrome disability, all media coverage seemed to focus on this issue,  in doing so effectively by-passing the concerns of the majority of the families. Were the Down Syndrome children discriminated against for cardiac surgery at the Brompton Hosptial?  The conclusion is ambiguous. Following are some of the more pertinent comments made by the Panel with regards to this issue: 
    • "Some of the families alleged discrimination in the treatment which was delivered to their child. We found no child who presented from 1990 onwards who did not receive appropriate treatment. We accept that in some cases surgery was delivered by other centres after a second opinion had been sought by the parents." [p347]
    • "The doctors are insistent that such insensitive remarks or inappropriate attitudes would not have been made or occurred. This area of parent concern, and the intensity with which it was expressed to us does ,however, suggest that there may  have been a breakdown in communication between some doctors and these families and these consultations may, in some cases, have lacked the sense of partnership that parents reasonably expected." [p349/350]
    • "The majority of the families we saw felt that communication in their child's case was at some time either inappropriate or insensitive. Remarks alleged to have been made by staff carried for parents the implication that children with Down Syndrome were of less value to society, or were less suitable recipients of scant NHS resources, than other children. The doctors are insistent that such insensitive remarks or inappropriate attitudes would not have occurred or have been made." 
    • "We are unable to conclude whether the impression of the families that some doctors at the RBH during these years were insensitive and displayed inappropriate attitudes towards children with Down Syndrome was well founded.  From the consistency of oral evidence we have heard, it is at least clear that there was a serious break down in trust and communication at the RBH between some clinicians and these families, which gave rise to a belief by parents that discrimination took place."
    • "Finally, we wish to state that, in presenting our conclusions, we believe that throughout the period of   review the doctors acted in good faith believing that their actions were in the best interests of the children concerned. Although we found no evidence of discrimination in the treatment delivered, it is essential for the RBH to take steps to assure the public that its services for all children are open, transparent, and free from discrimination."  [The above 3 quotes are from the Summary report p 42].
     The panel appears to have had some difficulty in ascertaining whether any discrimination against these particular children took place. 

    Recommendations

    8. Recommendations: The fact  that 119 recommendations were made, most of which applied to the Trust, indicates that all was not well at both hospitals. All of these recommendations are welcome, and if applied should lead to an improvement of standards at the Trust and, indeed, throughout the NHS. A few are highlighted below:
    • (3) " The Trust considers providing  tape recordings of key consultations about diagnosis and treatment options , with a detailed follow up letter being sent out in 20 days confirming what was said."[SIN's comments: This should be standard practice throughout the NHS  for all patients participating in key consultations regarding diagnosis and treatment options. This would protect both doctors and patients and  prevent any future misunderstandings .]
    • (4)" The Trust ensures that letters  to GPs are copied to parents so that they can see any changes in the diagnosis or planned treatment." [Sin's comments: this too should be standard practice throughout the NHS for all patients - after all, the illness belongs to the patient!]
    • (12)" The Trust should, in addition to the existing comprehensive consent procedure, prepare succinct and explicit guidelines making clear to all medical staff  that:

    • (a) " Consent must be real and informed
      (b) Consent must be obtained by the consultant or a senior doctor familiar with the child's case, who is competent to undertake the preferred treatment option 
    • (c)  Consent should be sought, except in an emergency , at  a pre-arranged time and in a place where reasonable and quiet can be provided." SIN's comments: Should not these Consent Guidelines be provided to all patients and their families? Surely these additional guidelines should already be standard practice?
    • (27)" The Trust reviews its policy of excluding parents from Ward Rounds and ensures that, as a matter of general policy, parents who are present in the hospital when a Ward Round takes place are welcome to attend." [SIN's comments: it is shocking that parents have ever been excluded from Ward Rounds, since they are responsible for the child and should be involved in all decision making. Also, SIN believes that adult patients should have the option of requesting that a friend or relative is present during a Ward Round. A sick patient is very vulnerable and can easily be intimidated when  outnumbered by medical staff.]
    • (53)" The Trust puts in place arrangements for parents to be given access to a computer and helped to use the Internet for the purpose of obtaining further information on their child's condition. This should include guidance on how to find and evaluate medical information." [SIN comments: this suggestion is applauded and should be introduced  throughout the NHS. Knowledge is a major source of patient empowerment with one proviso: that the information gained from the Internet by the patient is respected by the consultant responsible for that individual's care].
    • (55) " The Trust ensures that all cases of children requiring surgery at Harefield Hospital are fully discussed by the surgeon with other members of the clinical team prior to a decision being made to proceed with surgery."[ SIN's comments: Although  Harefield's paediatric surgical unit was closed in the Spring of this year (2001), it would be hoped that this would be a basic requirement for any surgeon, whether paediatric or not.]
    • Conclusion
  • (9)SIN agrees with Josephine Ocloo's analysis of the Evans' Report, that it was indeed an "institutionalised cover-up" . Although the Panel purported to carry out an independent investigation into the serious concerns of the parents, behind the scenes, unknown to these families,  representatives from several other agencies which have a major role to play in  maintaining standards within the NHS, were involved. The parents had no opportunity to liaise personally  with these representatives , to present tthem with their evidence or to  challenge their opinions,  having had no sighting of their input to this Inquiry. This is considered by SIN to be a major dis-empowerment of the families involved in the Inquiry. At the very least, surely, their written submissions should have been published as part of this Report? The involvement of these individuals, together with evidence of the Trust's clinicians appears to have allowed the Panel in the Report  to down grade the evidence submitted by the families. This has meant that other avenues  for redress in theory have been precluded.  [ See section 4 above "The Thwarting of Natural Justice].
  • At the Press Conference on 2nd. April, 20001, Ruth Evans pointed out that the Panel had found evidence of paternalistic attitudes. SIN is concerned   by the  Panel's attitude to parental evidence as revealed by the following quoted statement from the Report  :" We treated what the parents told us not as *prima  facie evidence but as sincere and genuinely felt expressions of concern about what went wrong with their child's care and treatment. While what parents told us was not attributable, that does not mean it was inaccurate."
  • This rather muddled statement appears to  insinuate that the parents' evidence, even when backed up with the child's medical records,  was  given less credence and indeed, would have been disregarded if such evidence were rebutted by the Trust's  clinician. If the panel did not treat parents' (accurate)  evidence as prima facie evidence, then all written and verbal statements to the effect that no case should be submitted to the GMC, or that none had grounds for medical negligence , would appear to be null and void. In SIN's opinion, such statements should,  in order that natural justice prevails, be publicly retracted.
  • *"prima facie" evidence means that on the face of it the evidence suggests that there is a case to answer.
  • For those interested, further information can be obtained from the Trust's website:www.rbh.nthames.nhs.uk
  • *******************************



     
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